New Brain Stimulaion Technique May Help Stroke Survivors with Aphasia

Utah 2013 jbm  - 195 - Version 2Aphasia—difficulty speaking and remembering words or names—is one of the most vexing aftereffects of stroke and other types of brain damage. Aphasia can also affect the ability to listen, read, spell, and work with numbers.

After my stroke, I couldn’t remember my husband’s name or how to call 911.

Every sentence was a struggle: to remember names, to find words—ordinary words for ordinary objects like “car” or “bookshelf” or “school.”

Marilyn (my speech therapist) explained what had happened to my speech and memory for words. “Your inability to remember names or think of words is called aphasia,” she told me.

Excerpt from A Stroke of Bad Luck and the Potholed Road to Recovery

Today, twelve years after my stroke, I’ve recovered well. Most people I meet can’t tell I’ve had a stroke.  But though I live almost normally, I still have problems with aphasisa. Every day it’s something different. Yesterday, I met with a friend who is helping me with my website. As she talked and I took notes, I stopped. Looking up at her, feeling puzzled and embarrassed, I said, “I don’t remember how to to spell ‘health.'”

Now researchers are testing a new technique of non-invasive brain stimulation that may help stroke survivors recover more language function earlier in the recovery process. It’s called transcranial magnetic stimulation (TMS) and involves a coiled, magnetic device that’s pressed to the patient’s head.   The device delivers magnetic pulses that reach the brain.

I imagine looking like a martian woman at the beauty salon for a color weave!

A new study by researchers at McGill University in Montreal combined TMS brain stimulation with traditional speech and language therapy for stroke survivors. Patients who received both had an average thirty percent greater improvement over those who received traditional therapy alone.

“For decades, skilled speech and language therapy has been the only therapeutic option for stroke survivors with aphasia,” said Alexander Thiel, M.D., the study’s lead author.  “We are entering exciting times where we might be able in the near future to combine speech and language therapy with non-invasive brain stimulation earlier in the recovery. This could result in earlier and more efficient aphasia recovery and also have an economic impact.”

That’s welcome news for all of us who suffer aphasia.

Find more information about the study here.

STROKE: I Want to Scare You Into Knowledge

I want to scare you out of your wits. I want to shake you and make you sit up and listen.

Because I don’t what happened in my family to happen to you. One uncle was blinded by stroke. Another died.  I was luckier: I survived my stroke, but not intact.

May is Stroke Awareness Month, my twelfth since stroke blindsided me in January 2002.

One of the real tragedies of stroke is that we don’t fear it enough.

I was talking with a fellow stroke survivor yesterday. She can no longer travel. I can no longer do math more complicated than a fifth grader might try. Strokes are like tornadoes, we decided, dropping in from nowhere, tearing lives apart in very different ways.

Or maybe strokes are like serial killers.

Watch this ad from the National Stroke Association in Australia. It’s graphic. It’s frankly rather gross. I want to you see it.  Then I want you to click below to learn what you need to know about stroke.

Learning the Facts about Stroke Can Save Your Life

 

Do You Know The Five Warning Signs of Stroke?

 

Do You Know the Special Stroke Symptoms Typical to Women?

 

What Should You Do If You Think Someone May Be Having a Stroke? (Hint: Act FAST!)

 

Ten Tech Tips To Save Time

As  stroke survivor with impaired dexterity in my hand, typing on the computer is one of my greatest frustrations. Emails and web posts are measured in hours, not minutes. So I’m always looking for ways to save time.

I think of myself as decently tech-savy, but I learned several new time-saving tricks today from New York Times tech columnist David Pogue.  He’s featured in the TED “talk of the week” with the presentation, “10 Top Time-Saving Tech Tips.”  Wow, that’s a tongue-twister that, with my  lisp, I can’t quite master. But I love his ten tips.

My favorite: When navigating the web, hit the space bar to scroll down a page. Hit “shift-space” to scroll back up. How could I not know that?

The video is only six minutes long, and well worth a look.  10 Tech Tips to Save Time

 

 

 

 

Packing for Paris, Part 2: Electronic “Gear”

Packing for Paris is not just clothes. What about all the electronic “gear” we’ll need for a working trip?

Packing is always hard for me. With memory loss and attention deficit from my stroke, it sometimes feels as though I’m running around the house for days trying to determine what I’ll need. Making lists helps.

Here’s the “gear” list I’ve make for myself for a trip this Fall to Paris and other destinations in the Isle de France. I’ll be staying in an apartment in Paris and, outside Paris, in older hotels in small villages–places that often aren’t geared for the proliferation of electronics that seem so indispensable these days.

But first a word on voltage and plugs …

France operates on 220 Volts and 50Hz on AC, while the US operates on 120 Volts and 60Hz. Voltage used to be a bigger consideration than it is today. Now, most computers, cameras, cellphones and e-readers are dual voltage, so the only adjustment necessary is a plug adapter.

Many US heat-generating appliances–like hair dryers, curling irons, or electric rollers, are not. In years of travel, I’ve found voltage converters heavy to carry, difficult to use, and unreliable, especially in older buildings. Instead, I just make sure all my appliances are dual voltage. Dual voltage hairdryers, curling irons, rollers, travel irons, etc. are readily available at travel stores and travel catalogs like Magellan’s.  With so many electronics–and relatively few outlets in older hotels, I also now carry a compact dual voltage extension cord.

My Electronics Packing List for France

Item Don’t forget
Cell phone Charging cord
Camera
  • Battery charger
  • Extra battery
  • Memory cards
  • Instruction book
  • USB photo loader

 

Laptop computer
  • Charger
  • Extension cord
  • Mouse if needed
  • Extra batteries for mouse
  • I once carried a mouse pad;  now I just use a magazine
E-reader if you have one
  • Charger

 

Travel size dual voltage hair dryer
Dual voltage curling brush
Plug adapters, both grounded and Non-grounded
Dual voltage extension cord
Lightweight computer bag to carry all this stuff. I like the Keen Adele.

 Have I forgotten anything?

Packing for Paris, Part 1–Clothes & Accessories

My French friend, Antoinette, has been advising me on what it takes to be stylish in Paris, where she and I will be traveling this fall with a group of friends.

Jungle Pants are out, out, out! As are waist packs, fanny packs, and­–mon Dieu!–tennis shoes.

Instead, we’re to put on bright lipstick, stash all our gear in an enormous black leather purse, and tread the cobble-stoned streets in stylish stiletto-heeled boots and a basic black wardrobe accented with colorful scarves and big jewelry.  I went for the bright lipstick and black bag.  The black wardrobe isn’t a problem. Alas, the stiletto-heeled boots (or heels of any kind) are out for me. I’m opting instead for my comfortable walking shoes and perhaps some low-heeled dress shoes that I’ll drop into that big black purse and slip on at appropriately stylish moments. Done!

Or not.

Here are a few other things I always have I my “kit bag.” They’ve helped me out of a jam more times than I can count:

 

Item
Rain jacket
Umbrella
Opera glasses – good for viewing stained glass windows as well as opera
Pocket magnifier (credit card size)
Pocket knife and small “leather lady” tool (in checked bag!). Great for wine & cheese picnics
Child-sized scissors
Small travel sewing kit
Glasses repair tool
Backup pair of prescription glasses
Notebook or journal
Extra pens and pencils
Quick dry travel washcloth
Small bar soap
A few travel packets of woolite
Small sandalwood fan
My favorite ginger tea
A few straws of sugar free electrolyte mix to “spike” my bottled water
A small currency conversion chart that I paste on the back of a business card

 When you travel what “special” items do you carry to make life easier?

Getting ready for a trip? A few important health reminders before you go …

My office is awash in yellow stickies this week … Don’t forget! Underlinings, stars and exclamation points decorate every page.

It’s clear there’s more  to remember than my brain can handle. Here are just a few of the admonitions swirling in my damaged  brain … I must pause and pull this together into an at least semi-coherent list:

  • Check  meds carefully. Order refills in plenty of time. Then, count to be sure I have enough of everything to last at least five days longer than I plan to be away. The extra days are a contingency against transportation delays.
  • Always carry my meds with me – never in checked luggage.
  • In addition to my usual medications, pack extra vitamins and remedies for colds or upset stomach that might arise on the road.
  • As a stroke patient on blood thinner, I carry lots of band-aids as well as pressure tape and clotting agents like the Quick Clock sponge.
  • I always get my INR checked (which tells how how well the Coumadin is thinning my blood) a day or two before I leave – several days if I’ve had trouble keeping stable.
  • I try to arrange it so I don’t need another blood test before I return home.  But, I carry a prescription from my doctor for a blood test to measure my INR just in case. If sense things are “off,” I can have it tested on the road.
  • I have to prod myself to wear my medical ID bracelets.

I also remind myself to:

  • Charge cell phone, computer, camera and Kindle the night before I leave
  • Double-check itineraries and tickets
  • Arrange airport transportation
  • Get plenty of rest before I leave. HA!

 

Do any of you feel overwhelmed by all the details?

Traveling with chronic Illness: Stories explore the ups and downs

It’s a pleasure to have four of my stories published over the past few months in three different anthologies. Each story, in its own way, explores the theme of traveling with chronic illness. That’s something I think about often as a stroke survivor and autoimmune patient chained to a steady diet of blood thinners to prevent another stroke.

I was the unlikeliest adventure traveler, having no real experience – and zero physical aptitude – for Indiana Jones style adventuring. All I had was heart, a taste for adventure, and a desire to see the world.  The stories tell what happened then.

Here’s where you can find them:

  • “Bali Shadows” and “Authentication Failed” appear in the travel anthology Wandering in Bali: A Tropical Paradise Discovered
  • “Toboggans and Bouzouki Music” appears in the juried anthology Travel Stories from Around the Globe by Bay Area Travel Writers
  • “Why I Still Travel to the Wild” appears in the anthology Chicken Soup for the Soul: Find Your Happiness, 101 Stories about Finding Your Purpose, Passion, and Joy

Here’s a link to purchase the books: http://bit.ly/Nj0fAF

And here are a few excerpts:

“Having flunked jump rope in seventh grade, having washed out of college PE, no one–least of all me–could have predicted that I’d marry an intrepid adventure traveler and follow him on wild jungle treks across crocodile infested rivers … I was new to exotic travel, tentatively following (my husband) Jack’s lead. In the years since, Jack and I had slogged through jungles and deserts on six continents. We’d tracked leopards in Botswana and grizzlies in Alaska. Bali would be an easy trip down memory lane. Now, my only fear was for my health.”

(Excerpt from “Bali Shadows”)

“I was different now: I’d had a stroke at forty-eight, a cataclysm that left me unemployed, memory-challenged, dependent on scary-high levels of blood-thinner, particularly vulnerable wherever medical care was thin.”

(Excerpt from “Why I Still Travel to the Wild”)

“When I talked about starting to travel again travel–especially to the adventure destinations Jack and I loved–my doctors cautioned me sternly: get plenty of rest, take it easy, avoid overheating, avoid dehydration, infection, accidents and, above all, never, ever hit my head. Adventure travel in my state of health, they seemed to imply, was like a 15-year-old with a learner’s permit competing in the Indy 500.

(Excerpt from “Toboggans and Bouzouki Music”)

Have you ever had qualms about traveling with a chronic illness?

 

i-Pad Apps Help Stroke Patients

Losing the ability to communicate well is one of the most devastating effects of a stroke. It was to me, when I had a stroke in 2002.

One day at the drugstore, shortly after my discharge from the hospital, the pharmacy clerk asked, “Is that Anne with an “e” or without?”

I hesitated, confused by the glaring fluorescent lights, the garish banners, the rows upon rows of remedies shelved in flashy cardboard boxes.

“Well, Don’t you know how to spell your own name?” she asked. A pimply teen aged boy in too-big jeans snickered in line behind me.

Heat crept up my neck. I wanted to disappear behind the shelf of diet aids–either that or slam them both over the head with a giant orange tub of fiber supplement.

Excerpt from Scrambling Back:One Woman’s Quest to Return to the Wild After Stroke and Autoimmune Disease

After my stroke, I was lucky to have a good speech therapist, but the only “electronic aid” I had to draw on was a tape recorder.

How things have changed in ten years! Now there are a variety of tablet apps–most so far for the i-pad–that are getting good reviews from patients and therapists.

“Apple’s iPad has helped to make life much better for stroke patients whose speech has been impacted,” one hospital rep said recently.

If you or someone you know has had a stroke, you might want to look into them.  I know I would.

Below are links to information and reviews on i-Pad communications apps.

Have you used any i-pad apps to aid in stroke recovery?

 

Blood thinners in the Jungle? Am I Crazy?

 

Am I Crazy? As an autoimmune patient with APS, as a stroke  survivor on blood thinners, people sometimes ask why I travel to places teeming with opportunities for disaster.

“Places where medical care is thin, the water is often unsafe and the food chancy; places with infectious diseases, malarial mosquitoes, venomous snakes and the wildest of animals; some places where the locals are just a few generations past headhunting.”

I have asked myself that question, many times, most recently when I set out for a month of temple climbing in India with my knee swollen and braced a week after suffering a “spontaneous” bleed.  Just one of the aggravating hazards of a life on blood thinners. I answered my own question–Why go?– in an essay titled “Why I Still Travel to the Wild,” and wrote about it again yesterday in my travel blog JunglePants.com.

My essay was published in the anthology Chicken Soup for the Soul: Find Your Happiness, available at bookstores and on-line. I hope you’ll check it out.

Why venture to the wild?

The photos below provides a hint about why I venture afar.

For another perspective, read famed travel writer Paul Theroux’s  eloquent essay about the siren pull of travel in  New York Times, “Why We Travel in Turbulent Times.”

Why do you travel?

Sri Lanka–Feeding times for toddler elephants
China–Frisky pandas at the Panda Research Center near Chungdu

Do You Know The Five Warning Signs of Stroke?

Static crackled as the paramedics talked into a radio.

“We think you are having a stroke,” one said.

Of course I’m not having a stroke, I wanted to tell him. Strokes are for the elderly, for smokers, for overweight couch potatoes.  I’m forty-eight years old, fit and perfectly healthy.

Excerpt from A Stroke of Bad Luck

[frame_left][/frame_left] I was so sure stroke couldn’t happen to me that I didn’t believe the paramedics; I doubted the neurologist in the ER. Yet, I was clearly in the grip of two of the most commons signs of stroke: numbness and lack of control in my right arm, and severe confusion and trouble speaking.

I wasn’t alone. A 2008 study sponsored by the Center for Disease Control found that less than 17% of respondents could identify all five warning signs of stroke and knew to call 9-1-1.

It’s also important to note the time when symptoms started.

How many stroke symptoms can you name?

These are the five most common symptoms of stroke.

  • SUDDEN numbness or weakness of face, arm or leg – especially on one side of the body.
  • SUDDEN confusion, trouble speaking or understanding.
  • SUDDEN trouble seeing in one or both eyes.
  • SUDDEN trouble walking, dizziness, loss of balance or coordination.
  • SUDDEN severe headache with no known cause.

A stroke is an acute medical emergency. Know the 5 Warning Signs – Then Call 9-1-1

May is Stroke Awareness Month. Learn more about stroke and its signs and symptoms