Antiphospholipid Syndrome Resources

 

• One of the best overviews of APS I’ve seen is by NINDS (the National Institute of Neurological Disorders and Stroke) part of the National Institutes for Health.
• Another is: Genome.gov: The National Human Genome Research Institute (also part of NIH) “Learning about Antiphospholipid Syndrome.”

• APS Foundation of America, Inc. [apsfa.org]
  A central location in the United States for Antiphospholipid Antibody Syndrome, its related diseases and general thrombophilia information.
• APS Support-UK (formerly known as the Hughes Syndrome Foundation. Antiphospholipid Syndrome (known as Hughes Syndrome in the UK) was first identified by London rheumatologist Dr.Graham Hughes.  This site has  wide range of information for patients, researchers, and physicians, including current research.
• Hospital for Special Surgery

 

Additional Resources for APS

 

• Lupus Foundation of America, Inc.: Antiphospholipid Antibodies [lupus.org] Antiphospholipid Syndrome is often found in conjunction with Lupus. This site provides information on antiphospholipid antibodies and APS.
• The National Alliance for Thrombosis and Thrombophilia [nattinfo.org]
  A nationwide, community-based, volunteer health organization committed to preventing and treating the array of major health problems caused by blood clots.
• Antiphospholipid syndrome [rarediseases.info]
  Information from the Genetics and Rare Diseases Information Center.
• Facebook: APS Foundation of America Facebook Page
• Facebook: London’s Hospital for Special Surgery
• Finding Reliable Health Information Online
  A listing of information and links for finding comprehensive genetics health information online.

 

APS On-Line Support

• Facebook: APS Friends and Family Support Group
• Facebook: Antiphospholipid/Hughes Syndrome APS Support Group
• Facebook: Antiphospholipid Syndrome (APS/Lupus Anticoagulant)
• Facebook: Antiphospholipid Antibody Syndrome Support Group
• Facebook: Hughes Syndrome/APS Support Group
• Facebook: APS Support UK
• Facebook: A Support Group for People with Hughes/Antiphospholipid Syndrome (APS)
• Facebook: Antiphospholipid Syndrome U.K
• Facebook: APS International
• Facebook: Antiphospholipid (APL/APS)/Hughes syndrome
• Facebook: Coumadin Club
• Daily Strength Antiphospholipid Syndrome Support Group
• Twitter: APS Foundation of America Twitter Page
  

 

Video

• Professor Anisur Rahman of University College, London, discusses the latest thinking on Antiphospholipid Syndrome, its causes and treatments in a 35-minute lecture delivered October 10, 2012, at the Royal Society of Medicine.
• What is Hughes Syndrome? An excellent eight-minute You-Tube overview of APS–also known as Hughes Syndrome–by Dr. Graham Hughes, the London rheumatologist who first identified APS.