Stroke Resources

On the Web

 

  • The Internet Stroke Center. Sponsored by the National Institutes of Health, this site provides a wide range of information about stroke for patients, families, and caregivers as well as professionals and students:  stroke types, causes, treatment options, risk factors, warning signs.  It also includes a section on living with stroke, a stroke center directory, and drug trials registry.
  • National Aphasia Association. A good source for information on aphasia (language impairment) including public education, research, resources and support services to recover lost skill.
  • Bungalow Software. Therapist-designed speech and language therapy software for home or clinic.  Offers  modules to help patients with articulation, word finding, reading comprehension,  and cognitive therapy.

 

Stroke Support

 

 

Online

 

 

Social Media

 

 

Magazines

 

 

Books

There are many good books to help stroke patients, families, and caregivers understand and cope with the aftermath of a stroke. Here are several that I found helpful after my stroke, plus more recent books that have been recommended to me:

  • The Stroke Recovery Book: A Guide for Patients and Families by Kip Burkman (Latest edition: Oct 1, 2010). Where I suffered a stroke nine years ago, I found only a couple of books written simply enough for me to understand. This was one of them. The author, a physical medicine and rehabilitation specialist, summarizes the causes, complications, and types of strokes and then discusses recovery, rehabilitation, and prevention. A good starting place for those who don’t know much about stroke, the book’s simple, easy to understand language makes it accessible to patients as well as caregivers.
  • After a Stroke: 300 Tips for Making Life Easier by Cleo Hutton, RN (Jun 10, 2005). This book concentrates on the home recovery process. The author, a twelve-year stroke survivor and nurse, provides practical tips on topics ranging from communication to safety and personal care to emotional and intimacy issues.
  • Family Guide to Surviving Stroke & Communications Disorders by Denis C. Tanner (July 2007). This book clearly describes the “big three” stroke-related communication disorders–aphasia, apraxia, and dysarthrias–and provides a guide for families and rehabilitation specialists to understand and respond to the needs of stroke patients.
  • Stroke Free for Life: The Complete Guide to Stroke Prevention and Treatment by David O. Wiebers, MD (May 2002). Dr. Weibers, Professor of Neurology at the world-renowned Mayo Clinic, lays out a simple to understand program for stroke prevention and treatment including a risk assessment questionnaire. The prevention section is important because those who’ve had one stroke are at high risk for another. The book is divided into four: understanding a stroke; assessing risk; lowering risk; and treatment and rehabilitation.